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Haemoglobin disorders

Haemoglobin disorders

Services for young people aged 12 to 18

Welcome to transition services for young people aged 12 to 18 who have sickle cell or thalassaemia. We hope you find the following information useful and, if there is anything else you are looking for, please let us know by emailing Linda.Keir@nhs.net

Contact details

Appointments: 020 8887 2579

Rainbow: 020 8887 2335

Linda Keir, specialist nurse: 020 8887 3301

Psychological support: 020 8887 3231

PDAU / Caroline Hyatt: 020 8887 3095

How do I get to…

Children's outpatients: main building, level -1

Phlebotomy (blood tests) for under 18s: main building, level -1. If you are 16-18, please use the adult blood testing services in the hospital's main outpatients department, main building, level 0. If you are 16-18, it's quick and easy to book your appointment online 

Accident and emergency (A&E): the entrance to A&E is about 80 metres from the hospital's main entrance, next to the main visitors' car park, off Bridport Road. There are signs outside the main entrance

How does transition work for young people with sickle cell?

Click here for a transition services leaflet which gives an overview of the services we provide for young people

Transition health plans

We will use your transition health plan every time we see you in clinic or on a ward to see which parts you need the most help with. Please let us know when you see us, if there are things you would like to talk about

Click here for a sample transition plan (updated September 2015)

Click here for a sample sickle cell disease health plan 

Click here for a sample thalassaemia health plan

Other useful information:

Leaflet about sickle cell, possible complications and treatments, and tips for looking after yourself: sicklecellsociety.org/wp-content/uploads/2015/10/Did-You-Know-Age-11-16.pdf

Keeping well with sickle cell disease - North Mid leaflet: click here

Vaccinations given at secondary school: 

www.gov.uk/government/uploads/system/uploads/attachment_data/file/468691/PHE_9476_Young_people_A5_20p_15_web.pdf

Dietary advice for children with sickle cell disease  - North Mid leaflet: click here 

Healthy eating and how to get your ‘five a day’ in a hurry and on a budget: www.nhs.uk/Livewell/5ADAY/Documents/(activities-health)-5-a-day-whats-it-all-about[1].pdf

Talk to Frank about legal and illegal drugs: www.talktofrank.com/sites/default/files/The%20Truth%20About%20Drugs.pdf

Talk to Frank about alcohol and drugs: www.talktofrank.com/drug/alcohol

For girls: what’s happening to your body during puberty? www.fpa.org.uk/sites/default/files/4girls-female-body-growing-up-puberty.pdf

For boys: what’s happening to your body during puberty? www.fpa.org.uk/sites/default/files/4boys-male-body-growing-up-puberty.pdf

Priapism and sickle cell disease - North Mid leaflet: click here

Education, health, jobs and skills - local information: www.youthspace.haringey.gov.uk/

Emotional wellbeing and mental health - information and support: www.youngminds.org.uk/

Improving conversations in clinic - short films made by young people and doctors: http://talklab.nhs.uk/

Page last updated: January 2018